Radha Kandola, a 22-year-old graduate from Birmingham University, was finally diagnosed with endometriosis in December after six years of debilitating pain, during which she was repeatedly told there was nothing wrong with her. The condition, where cells similar to the womb's lining grow elsewhere in the body, caused her constant burning and twisting sensations.
Initial Symptoms and Dismissal
At age 17, Radha experienced deep back pain that eventually subsided, only to return two years later in full force, enveloping her lower back and stomach with a constant burning sensation. Despite her suffering, doctors dismissed her concerns, with one GP stating, "You're a healthy weight... there's nothing wrong with you." Scans and blood tests failed to identify the cause.
Misdiagnosis and Further Delays
Radha was passed between neurosurgeons, doctors, and gynecologists. She was eventually told she had a slipped disc, but medication did not alleviate the worsening pain. After being discharged multiple times over two years, an MRI scan revealed that the tissue in her stomach was "getting quite close together," leading to a recommendation for a laparoscopy.
Surgery and Diagnosis
In December, Radha underwent a laparoscopy, which confirmed endometriosis in her bowel, bladder, and near her right ovary. Surgeons removed some of the tissue, but she was discharged without follow-up care. "Since then, I haven't actually had any follow-ups, and I'm back to square one with getting the pain treated again," she said.
Ongoing Pain and Management
Radha continues to experience daily pain, which she describes as a constant burning in her lower stomach and back, likening it to "if you were to twist something inside and keep it twisting." During her period, the pain becomes unmanageable, leaving her unable to stand for long. She manages her condition with birth control, Pregabalin for nerve pain, anti-sickness tablets, and high doses of Ibuprofen.
Looking Forward
Now focused on her next steps, Radha has been referred to a specialist in Birmingham and is considering further surgery. Despite her challenges, she remains determined to stay active. In September, she will participate in a 10k Wolf Run obstacle course in Warwickshire to raise funds for Endometriosis UK, a charity that advocates for prompt diagnosis and support. "Part of me is wanting to prove that women who have endometriosis or just any condition in general can still do things," she said.
