A vital charity supporting Somerset families affected by a rare genetic disease has been given a significant financial boost thanks to a local housebuilder.
A Lifeline for Families Facing a Rare Condition
David Wilson Redrow South West has donated £1,500 to PCD Support UK, the nation's sole charity dedicated to helping those with Primary Ciliary Dyskinesia (PCD). This little-known genetic condition affects approximately one in every 7,500 people. It damages the microscopic hairs, or cilia, in the airways, leading to chronic lung infections, sinusitis, hearing problems, and fertility issues.
The charity, though small, provides a crucial network for patients, parents, and carers across the UK, including in communities where the housebuilder is active. These areas include Somer Meadows in Midsomer Norton, Francis Fields at The Mount in Frome, and Polden Orchards in Bridgwater.
How the Donation Will Make a Difference
The £1,500 contribution will enable PCD Support UK to continue its core mission of connecting families, raising awareness, and funding essential research. Michelle Robinson, chair of the charity, expressed her gratitude for the support.
"This donation means a great deal to everyone involved with PCD Support UK," said Robinson. "It offers not just financial aid but also valuable recognition of the challenges faced by those living with this complex and often overlooked condition."
The funding could be used in several impactful ways:
- Funding attendance at an international medical conference to raise global awareness of PCD.
- Supporting patients with travel costs to specialist hospital appointments.
- Providing physiotherapy tools and exercise equipment to improve patients' quality of life.
Building More Than Homes: Supporting the Community
Louise Ware, sales director for David Wilson Redrow South West, highlighted the growing need for the charity's services, particularly during the ongoing cost-of-living crisis which has made fundraising more difficult.
"We are proud to support PCD Support UK and help raise awareness of a condition that affects families in our local communities," Ware stated. The donation underscores the company's commitment to supporting charitable causes in the regions where they build new homes.
For families in Somerset and across the UK navigating life with Primary Ciliary Dyskinesia, this donation represents more than just money—it's a beacon of support and a step towards greater understanding and improved care.
