The family of a one-year-old who was cared for by Hope House children’s hospice will help launch the charity's brand new event this summer. Archie Crute’s granny Amanda Trubshaw will be joined by his parents, Dan and Becky, for the 5k Glow Walk in Aberystwyth.
First Dedicated Fundraiser in Aberystwyth
The event on Saturday, August 8 marks the first time the hospice charity has hosted a dedicated fundraiser in the town. Every step taken during the evening will help the team continue to provide vital care across Wales. Amanda said: "Hope House is a truly remarkable place, and we were so lucky to have it when we needed it for Archie."
The youngster, who lived with his mum and dad in Wrexham, was diagnosed with Menkes disease as a baby. The rare and untreatable condition affects around one in every 300,000 babies.
Personal Memories of Care
"I can still remember the first time I visited the hospice to see Archie," said Amanda, who works at Aberystwyth Arts Centre. "I thought it was going to be all doom and gloom. But then when I got there the staff were lovely and it was all about making happy moments for Archie with us all."
She added: "I was lucky enough to have a swimming session with Archie in the hydrotherapy pool, and it was truly lovely. I remember seeing him totally relaxed. He was in the water, and you could really see him enjoying that sensation with all the lights. It was the same with the sensory room."
Event Details and Route
Amanda and her family will set walkers on their way from Aberystwyth Bandstand at 8.30pm. The route will loop around the town’s castle as dusk falls and the promenade begins to glow. The family-friendly event is open to all ages and abilities with participants receiving a glow headband and a medal.
"We’re delighted to welcome Amanda, Dan and Becky to join us to start our first Glow Walk, which is also very kindly being sponsored by local business Andrew Scott Ltd," said Bekki Fardoe, from Hope House. "It’s a brilliant opportunity to bring people together for something fun while raising awareness of the care we provide to children and families across Wales. We want to reach more families that may benefit from our services across Ceredigion, and this is our first step is raising awareness of us as a charity in the area."
Community and Corporate Support
Mark Bowen, of Andrew Scott Ltd, said: "We are incredibly proud to be headline supporters of the first ever Aberystwyth Glow Walk in aid of Hope House Tŷ Gobaith. As a Welsh business, we believe it is important to give something back to the communities where we live and work. The incredible support provided by Hope House Tŷ Gobaith to children and families across Wales is truly inspiring, and we are delighted to play a part in helping them continue their vital work. We’re looking forward to seeing Aberystwyth light up and being part of what promises to be a very special evening."
You can take part individually or as part of a group, and friendly dogs on leads are also welcome. Sign up for the Aberystwyth 5k Glow Walk on Eventbrite.
